Pam9

I wouldn’t if I were you !!splash of cranberry diluted with water would be much better.

I wouldn’t if I were you !!splash of cranberry diluted with water would be much better.

Sterling

I use no salt added butter.

I use no salt added butter.

A myIgANcenter Subscriber

Yes my lower back hurts me all the time stage 4

Yes my lower back hurts me all the time stage 4

Gerry

I hope not. Because It is important to me

I hope not. Because It is important to me

Pat673

Why do you always say read the article when the article does not give you ideas for new recipes that a person with kidney disease could eat.

Why do you always say read the article when the article does not give you ideas for new recipes that a person with kidney disease could eat.

A myIgANcenter Subscriber

The white substance you're noticing could be protein in your urine (proteinuria), which is a common symptom of IgA Nephropathy. However, it's important to discuss this with your doctor right away… read more

The white substance you're noticing could be protein in your urine (proteinuria), which is a common symptom of IgA Nephropathy. However, it's important to discuss this with your doctor right away. They can test your urine to determine exactly what the substance is and check your kidney function. Keep track of when you notice it and any other symptoms you experience to share with your healthcare team.

yvonne10

My husband complained for years to his doctors about unbearable abdominal pain twenty-four hours a day every day. On the day he passed in the emergency department of the hospital, he had very little… read more

My husband complained for years to his doctors about unbearable abdominal pain twenty-four hours a day every day. On the day he passed in the emergency department of the hospital, he had very little urine accumulated in the bag but he was becoming extremely bloated from the fluid intake as I.V. He was never diagnosed as having kidney problems; in fact he was never tested for it. Could he have died from kidney failure? Would you have any idea as to why he became so bloated from the many bags of I.V. administered?

A myIgANcenter Subscriber

Biotin 5000mcg has not been shown to directly cause kidney damage when taken as a supplement. However, if you have IgAN you should:

Tell your doctor you're taking it, as biotin can interfere with… read more

Biotin 5000mcg has not been shown to directly cause kidney damage when taken as a supplement. However, if you have IgAN you should:

Tell your doctor you're taking it, as biotin can interfere with some lab test results
Start with a lower dose (around 1000mcg) and monitor how you feel
Check with your nephrologist before starting, as they know your specific kidney function
The main concern with biotin isn't kidney damage, but rather ensuring it doesn't interact with your other IgAN medications or treatments.

A myIgANcenter Subscriber

I can tell you that sports drinks should be consumed cautiously with IGAN. They're high in sodium and sugar, which can impact your kidneys. Regular water is usually a better choice. If you're… read more

I can tell you that sports drinks should be consumed cautiously with IGAN. They're high in sodium and sugar, which can impact your kidneys. Regular water is usually a better choice. If you're exercising intensely, talk to your doctor about appropriate electrolyte replacement options for your specific situation.

Always check nutrition labels and discuss any dietary changes with your healthcare team since individual needs vary based on your IGAN severity and other health factors.

A myIgANcenter Subscriber

IgA Nephropathy (IgAN) is like having overprotective bouncers (IgA antibodies) in your kidneys that get too excited about their job. These antibodies, which normally help fight infections, start… read more

IgA Nephropathy (IgAN) is like having overprotective bouncers (IgA antibodies) in your kidneys that get too excited about their job. These antibodies, which normally help fight infections, start building up in your kidney filters (glomeruli). Over time, this buildup can cause inflammation and scarring, making it harder for your kidneys to clean your blood properly.

Think of it like a clogged coffee filter - when the filter gets gunked up, it can't strain the coffee as well. Similarly, when IgA proteins build up in your kidneys, they can't filter your blood as effectively as they should.

It's a chronic condition that typically develops slowly over many years, and symptoms can vary from person to person.