00:00:02:12 - 00:00:23:11
Ariana
The main symptoms that I struggle with as an IgA nephropathy patient are brain fog and fatigue. To deal with fatigue, I’ve learned to just take more time to rest and let my body recover and heal. I’ve had to learn to be OK with not being able to keep up with my family and my friends. The other big struggle is brain fog.
00:00:23:12 - 00:00:47:10
Ariana
I struggle a lot with losing my train of thought midsentence, so I have been relying very heavily on the Notes app in my phone, on Post-it notes, and on my phone's calendar. Ever since my diagnosis, I have been fighting hard for myself and for other patients because with rare diseases, a lot of times people just simply go undiagnosed.
00:00:47:23 - 00:01:02:05
Ariana
To my fellow IgA nephropathy patients, you are not alone. IgA nephropathy is not a death sentence. There is a lot of research and a lot of new treatment options to help patients like you and me. You shouldn’t forget that. We should be very thankful.
Since being diagnosed with IgA nephropathy (IgAN), Ariana Barton has committed to improving her own health, as well as advocating for quality care and education for others with kidney diseases. She believes everyone with IgAN deserves access to a proper diagnosis and treatment options that could halt the progression of their kidney disease. Ariana eventually found an effective IgAN treatment and is currently in remission. Watch the video to hear her tips for living with fatigue and brain fog symptoms.
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