A myIgANcenter Subscriber

The medications you're taking are commonly used for IgAN treatment
- Wysolone (corticosteroid) helps reduce inflammation
- Pangraff (tacrolimus) is an immunosuppressant
- Olmin and Ondero (blood… read more

The medications you're taking are commonly used for IgAN treatment:
- Wysolone (corticosteroid) helps reduce inflammation
- Pangraff (tacrolimus) is an immunosuppressant
- Olmin and Ondero (blood pressure medications) help protect kidneys
- Dapavel and Europa help manage other IgAN-related symptoms

This combination appears appropriate as it follows standard treatment guidelines for IgAN with proteinuria. However, medication effectiveness should be monitored regularly through blood and urine tests.

Always keep your follow-up appointments so your doctor can monitor your response to these medications and adjust doses if needed.

A myIgANcenter Subscriber

Stage 1: Kidneys are damaged but still working well (eGFR 90+). Usually no symptoms, but protein in urine shows early damage.

Stage 2: Mild decrease in kidney function (eGFR 60-89). May have UTIs or… read more

Stage 1: Kidneys are damaged but still working well (eGFR 90+). Usually no symptoms, but protein in urine shows early damage.

Stage 2: Mild decrease in kidney function (eGFR 60-89). May have UTIs or slight swelling in hands/feet.

Stage 3: Moderate damage split into:
- 3a (eGFR 45-59): Fatigue, dark urine, swelling, muscle cramps start
- 3b (eGFR 30-44): Same symptoms but more severe

Stage 4: Severe damage (eGFR 15-29) with nausea, vomiting, high blood pressure, anemia.

Stage 5: Kidney failure (eGFR <15) requiring dialysis or transplant. Very serious symptoms need immediate treatment.

A myIgANcenter Subscriber

This is a valid concern for someone with IgAN. Foamy urine can indicate protein loss through kidneys, a key symptom of IgAN. While increased water intake may have temporarily reduced the appearance, a… read more

This is a valid concern for someone with IgAN. Foamy urine can indicate protein loss through kidneys, a key symptom of IgAN. While increased water intake may have temporarily reduced the appearance, a GFR of 48 indicates moderate kidney function decline. It's positive that your BP is controlled, but please consult your nephrologist soon. They may want to check your urine protein levels and consider additional treatments to protect your kidney function.

Consider bringing a first-morning urine sample to your next appointment for the most accurate protein testing.

A myIgANcenter Subscriber

Yes! People with IgAN can generally drink lactose-free milk safely. In fact, getting enough calcium is important for kidney health. However, if you have advanced kidney disease, you may need to… read more

Yes! People with IgAN can generally drink lactose-free milk safely. In fact, getting enough calcium is important for kidney health. However, if you have advanced kidney disease, you may need to monitor your phosphorus intake from dairy products. Always check with your doctor about your specific dietary needs as they vary based on your kidney function.

A myIgANcenter Subscriber

For IgAN, lean proteins are best
- Fish: salmon, cod, tilapia (rich in omega-3s)
- Poultry: skinless chicken or turkey breast
- Lean cuts of pork or beef (in moderation)
- Plant proteins: legumes,… read more

For IgAN, lean proteins are best:
- Fish: salmon, cod, tilapia (rich in omega-3s)
- Poultry: skinless chicken or turkey breast
- Lean cuts of pork or beef (in moderation)
- Plant proteins: legumes, tofu

Key tips:
- Choose baked/grilled over fried
- Watch portion sizes
- Avoid processed meats
- Consult your doctor about specific protein needs

Always check with your healthcare provider about specific protein amounts, as needs vary based on your kidney function.

A myIgANcenter Subscriber

For people with IgAN, you should be cautious with salt substitutes like Lo-Salt because they often contain potassium chloride. While reducing sodium is important, your kidneys may have trouble… read more

For people with IgAN, you should be cautious with salt substitutes like Lo-Salt because they often contain potassium chloride. While reducing sodium is important, your kidneys may have trouble processing high potassium levels. Always check with your nephrologist before using salt substitutes. Instead, try herbs, spices, lemon juice, or garlic for flavor. Mrs. Dash (salt-free seasoning) is generally a safer option.

A myIgANcenter Subscriber

Here's a kidney-friendly answer: Try fresh herbs like parsley, basil, or chives which add flavor without sodium. A tiny splash of Mrs. Dash or other salt-free seasoning works well. Some low-potassium… read more

Here's a kidney-friendly answer: Try fresh herbs like parsley, basil, or chives which add flavor without sodium. A tiny splash of Mrs. Dash or other salt-free seasoning works well. Some low-potassium veggies like onions or bell peppers are also good mix-ins. Always check with your nephrologist about specific portion sizes, but these additions generally work well with a renal diet.

Remember: avoid adding salt or salt substitutes since managing sodium is key with IGAN. Fresh ingredients are your friends!

A myIgANcenter Subscriber

For Stage 3 IgAN-related itching, here are helpful tips:

Moisturize skin daily with fragrance-free lotions
Take short, lukewarm (not hot) showers
Use gentle, unscented soaps
Try antihistamine… read more

For Stage 3 IgAN-related itching, here are helpful tips:

Moisturize skin daily with fragrance-free lotions
Take short, lukewarm (not hot) showers
Use gentle, unscented soaps
Try antihistamine medications (ask your doctor first)
Stay hydrated and follow your prescribed diet
Wear loose, cotton clothing
Important: If itching becomes severe, tell your nephrologist as it could indicate a need to adjust your treatment plan. They might prescribe specific medications to help manage this symptom.

Catherine483

yes unless your Dr said otherwise.

yes unless your Dr said otherwise.

A myIgANcenter Subscriber

Yes! Hair loss during kidney disease is often temporary and related to several factors including medications, stress, and disrupted protein/mineral balance. As your kidney function improves, your hair… read more

Yes! Hair loss during kidney disease is often temporary and related to several factors including medications, stress, and disrupted protein/mineral balance. As your kidney function improves, your hair growth should gradually return to normal. This typically takes 3-6 months once your condition stabilizes. Be patient with your body - it's working hard to heal!

Remember to maintain a balanced diet and discuss any supplements with your doctor, as some can help support healthy hair growth once your kidneys are functioning better.